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Lupus
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Validation of the Spanish, Portuguese and French versions of the Lupus Damage Index questionnaire: data from North and South America, Spain and Portugal

BA Pons-Estel

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

J Sánchez-Guerrero

Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico City, México

J Romero-Díaz

Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico City, México

A Iglesias-Gamarra

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

E Bonfa

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

EF Borba

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

SK Shinjo

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

S Bernatsky

McGill University Health Center, Montreal, Canada

A Clarke

McGill University Health Center, Montreal, Canada

MA García

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

JC Marcos

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

A Duarte

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

GA Berbotto

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

H Scherbarth

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

CD Marques

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

L Onetti

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

V Saurit

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

AWS Souza

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

E Velozo

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

LJ Catoggio

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

O Neira

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

PI Burgos

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

LA Ramirez

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

JF Molina

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

IG De La Torre

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

R Silvariño

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

JA Manni

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

S Durán-Barragán

Unidad de Investigación en Enfermedades Crónico-Degenerativas, Guadalajara, México

LM Vilá

The University of Puerto Rico Medical Sciences Campus, San Juan, Puerto Rico, USA

PR Fortin

Toronto Western Hospital Research Institute, University of Toronto, Toronto, Canada

J Calvo-Alén

Hospital Sierrallana, Torrelavega, Cantabria, Spain

MJ Santos

Hospital García de Orta, Almada, Portugal

M Portela

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

MH Esteva-Spinetti

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

M Weisman

Cedars-Sinai Medical Center, Los Angeles, California, USA

EM Acevedo

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

MI Segami

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

SB Gentiletti

Grupo Latino Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina

J Roldán

University of Texas Health Science Center, San Antonio, Texas, USA

I Navarro

The University of Alabama at Birmingham, Birmingham, Alabama, USA

E Gonzalez

The University of Texas Medical Branch, Galveston, Texas, USA

JM Liu

The University of Alabama at Birmingham, Birmingham, Alabama, USA

EW Karlson

Harvard Medical School, Boston, Massachusetts, USA

KH Costenbader

Harvard Medical School, Boston, Massachusetts, USA

F Wolfe

The National Databank for the Rheumatic Disease, Wichita, Kansas, USA

GS Alarcón

The University of Alabama at Birmingham, Birmingham, Alabama, USAgraciela.alarcon{at}ccc.uab.edu

We have previously developed and validated a self-administered questionnaire, modelled after the Systemic Lupus International Collaborating Clinics Damage Index (SDI), the Lupus Damage Index Questionnaire (LDIQ), which may allow the ascertainment of this construct in systemic lupus erythematosus (SLE) patients followed in the community and thus expand observations made about damage. We have now translated, back-translated and adapted the LDIQ to Spanish, Portuguese and French and applied it to patients followed at academic and non-academic centres in North and South America, Portugal and Spain while their physicians scored the SDI. A total of 887 patients (659 Spanish-speaking, 140 Portuguese-speaking and 80 French-speaking patients) and 40 physicians participated. Overall, patients scored all LDIQ versions higher than their physicians (total score and all domains). Infrequent manifestations had less optimal clinimetric properties but overall agreement was more than 95% for the majority of items. Higher correlations were observed among the Spanish-speaking patients than the Portuguese-speaking and French-speaking patients; further adjustments may be needed before the Portuguese and French versions of the LDIQ are applied in community-based studies. The relationship between the LDIQ and other outcome parameters is currently being investigated in a different patient sample.

Key Words: damage • French • Portuguese • SLE • Spanish • validation

Lupus, Vol. 18, No. 12, 1033-1052 (2009)
DOI: 10.1177/0961203309105590
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