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Lupus
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Discordance between patients and their physicians in the assessment of lupus disease activity: relevance for clinical trials

Jim C Yen

Division of Clinical Epidemiology, McGill University Health Centre, Montreal, Quebec, Canada

Carolyn Neville

Division of Rheumatology, McGill University Health Centre, Montreal, Quebec, Canada

Paul R Fortin

Division of Clinical Epidemiology, The McGill University Health Centre, Montreal General Hospital, 1650 Cedar Avenue, Montreal, Quebec H3G 1A4, Canada. Tel: (+ 1) (514) 937 6011, ext. 4718; fax: (+ 1) (514) 934 8293 mdfn{at}musica.mcgill.ca; Department of Medicine, The McGill University Health Centre, McGill University, Montreal, Quebec, Canada

Discordance between patient and physician assessment of lupus activity occurs frequently and its determinants are not known. Examples of discordance between patients and physicians in other disease models can be found in the literature. A better understanding of the discordance between patients and physicians can help us achieve a shared decision-making model of health care, improve patient satisfaction, improve patient compliance, and improve physician understanding of how lupus impacts on their patients. Understanding discordance also impacts on the design and interpretation of clinical trials.

Key Words: systemiclupuserythematosus • discordance • diseaseactivity • patient—physicianrelationship

Lupus, Vol. 8, No. 8, 660-670 (1999)
DOI: 10.1191/096120399680411362
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